raising twins

conceived twins naturally....TWICE IN A ROW

by hashia
(St. Thomas VI)




Quinn and Duncan

Quinn and Duncan

My story hasn't quite ended just yet, but more like an evolution of understanding the true range of motherhood. Although it is long, I hope that it can help serve beneficial to anyone who lost a twin.

My name is Hashia. I have a five year old girl named Jaina, a three year old boy named Malcolm, another boy who is one named Quinn (one of an identical), and currently 29 1/2 weeks pregnant with twin girls.

In Feb 2007, we found out we were pregnant with twins. However, at my 10 week ultrasound there was a growth discrepancy of 3 days between the two boys. That is quite a gap at such an early gestation. We thought of TTTS right away. We wanted a choronicity test, but my doctor insisted on waiting until the 15 week ultrasound to better see if there was one placenta or two. My fifteen week ultrasound showed one big placenta and a growth discordance of 7 days between the two babies. Since the ultrasound couldn't really differenciate whether or not I had one or two placentas, I left the island that I live on to stay with my mother-in-law. There, I stayed on bedrest while my mother-in-law watched the kids and my husband stayed back to work.

It was really hard bonding with the babies and my pregnancy not knowing exactly what was going to happen. Was it TTTS? I kept having characteristics, but never a stage. The amnio results showed that they were identical but without any chromosomal defects. By week 20, the discordance was 16 days. The weekly ultrasounds were tedious, not knowing if baby B was alive. I just kept praying to get to a gestational age that they could be born with the best chances of survival. At 28 weeks, steroids were administered as well as bi-weekly biophysical ultrasounds.

30 weeks and 3 days. That was the day my husband's flight landed with a message telling him that he needed to drive directly to the hospital. That morning my ultrasound showed that Baby B had no diastolic flow. The c-section was underway. Baby A was Quinn. He weighed in 3lb 12oz. Baby B was Duncan. He was 2.2 lbs. The pathology results for the placenta showed there were two placentas fused together with Baby B's being smaller with infarctions.....basically it never formed quite right.

Being so paralyzed with fear, I just wanted to see Duncan in case he passed away. The neonatologist reassured me things were fine. For 36 hours he breathed on his own....then was intubated to help with his oxygen saturation. There were no medical emergencies or problems. He had a clean bill of health other than the natural preemie issues. After a few days, the doctor's recommended closing his PDA with some medicine to help with the oxygenation. Two days later, he went into congestive heart failure! The blood shunting from the PDA was actually keeping him alive. There was an underlying coarctation of the aorta that didn't show up on the ECHOs. Even after a surgery, he passed away at 16 days old.



Did I know that this was going to happen? Did my mother's intuition keep me from bonding? Should I have known this would be the end? I felt guilty for not knowing what I thought I should. I racked my brain feeling so inadequate for all that happened. Then a moment of clarity that I wasn't meant to know but instead just learn my lesson. MY LESSON was the art of acceptance. Instead of "getting over it", I "went through it". In the end, I knew there was no more looking back.

FAST FOWARD TO DEC 2008...... I am pregnant again! We had wanted four and were so excited. I went for a 6 week ultrasound and there was only one fetus. Things were progressing fine except for the fact that my head was in a pillow for two months. The morning sickness was close to intolerable. I never had it so bad in the previous three pregnancies. Also, I seemed to gain weight faster but attributed that to already having given birth to four children, my last pregnancy being twins.

20 week ultrasound. The perinatologist says, "so, you already know that you're having twins?" My husband almost hit the floor saying, "what with two beating hearts?" IT WAS TWINS AGAIN!!!

This time we have two little girls inside who are doing fairly well. Both have seperate placentas and are growing within range. Baby A is a bit smaller but not enough for worry. I am hoping to get to 36 weeks and have a successful VBAC.

I think that GOD gave us all more power, wisdom, and strength than we want to accept. There are definitely times when we think that we just can't take anymore. There are times when we want to quit. The truth is that everything passes and we get to look back with a feeling of accomplishment. I now know I can definitely handle the craziness of twins like every other mom out there. :)

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conceived twins naturally....TWICE IN A ROW

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We've been there too...but we were one of the lucky ones.
by: Jen

I'm so sorry about your loss. I now have two very happy healthy almost 4 year olds but we didn't start out that way. I knew from the very begining that I was pregnant with twins. I was thrilled and then the dark cloud showed up. At around 6 weeks they couldn't find a membrane between the two babies so there was a strong possibility that they were monoamniotic. Thankfully this wasnt the case. At 12 weeks they were starting to shows differences in size. They were watched very carefully. Weekly ultrasounds, prenatal echo due to a shared placenta and diagnosed with possible TTTS. I made it to 34 weeks. Baby B was a whole pound smaller than her sister and didn't cry right away when she was born. I knew the moment she was born something was wrong. I was very sick after my emergency C section and didn't get to see the girls right away but when I did it was obvious that she was quite ill. They weren't sure why at first. SHe was diagnosed with a coarctation at 3 days old. She was 3lbs 6oz and they wanted her a little bigger before the surgery. Her twin went home at 8 days old. At 10 days old they could no longer wait and I had her baptised and she had surgery the next morning to correct the coarc. I didn't bond with my sweet little one for a while. She was probably close to a month old. I would beg God to not let her suffer and just take her. I wouldn't let myself fall in love. I couldn't bear to see her so sick with all of the wires and tubes and then very quickly she recovered. By time she was a month old she was ready to go home at almost 4 lbs. We had it rough in the begining. She ended up back in the hospital at 2 1/2 months with double inguinal hernias. That was a piece of cake after what we had just been through. I remembered a nurse coming up to me when they wheeled her to the OR and saying she'll be fine dont worry momma. I looked at her and laughed and said this is nothing! If you saw her today you would never know except for the surgical scars which are so incredibly light. We lucked out and one of the most renowned pediatric cardiologists in the US lives in our little city and I thank God for that every day. I can tell you that I wouldn't bring her twin sister home until they ran and EKG and ECHO and showed me the results.

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twins
by: Anonymous

i know how it feels to loose 1 of your twins, i first found out that i was having twins at my 12 weeks ultrasound but i wasnt really surprised i had really strong feelings that i was having twins. they both seemed perfectly healthy and both were the same size all the way through my pregnancy until about 33 weeks then 1 twin 2 slowed down a little but nothing to worry about i had multiple ultrasounds until 37 weeks they all showed no problems as far as i knew i was carrying to healthy babies. i had them via c section at 37 weeks and 4 days twin 1 was 5 pound 15 and twin 2 was 5 pound 6 both seemed healthy but twin 1 wasnt feeding properly and was very unsettled and having 3 babies prier i knew there was just something a little different with her but all the doctors and midwifes all told me that she was fine. i got home from hospital after 6 days and noticed that she was sleeping alot more then her sister and she was becoming very pail, right before i was about to take her into the hospital she turned purple for about a minute and we got the ambulance straight away and was told that she was fine but i knew she wasnt she wasnt the right colour and was very lethargic when u got to the hospital i was told again that she looked fine but they told me to lay her on the bed to check her out just to be sure. as i layed her on the bed she turned purple again and went into cardiac arest and passed away after an hour of the nurses and docs trying to revive her. we later found out after the coriners report that she had an atrial septal defect and narrowed aorta which was not picked up with all the ultrasounds and doctors that she saw at birth it was just so sudden after being told you have 2 healthy baby girls and then having to go through that i wouldnt wish it on anyone. anyway what i'm trying to say is if you think that things dont seem right or you have any concerns stress the point because they might be trained but mothers know best and have instint if i had have stressed the point that she wasnt right maybe she'd still be alive.

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no genetic link
by: Anonymous

No, my husband nor I have been tested for any heart defects. Although, they do say that once I have a child with a congenital defect, that I the chances of having another one is higher.

The doctors think the reason for the defect was just placental insufficiency. They were identical and genetically fine. The "congenital" defect came from being in the wound with a very small share of placenta and bad cord insertion.

At the moment our twin girls (fraternal) are seven months old and doing well. One of the girls is of small size and has mild hypotonia (low muscle tone). She goes to PT and OT weekly and we are still trying to diagnose her properly.

Are there any other twin parents where one twin has low muscle tone?

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hi
by: Anonymous

I am so sorry about the loss of your sweet baby boy. I am curious whether you or your husband or any of your other children have been tested and have a related heart defect, because of the type your son had? I hope you are all healthy, and I wish you the best of luck with your lovely family.

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amazing mom
by: Anonymous

Hi!

Thanks for sharing your story. I think it can definitely help those who have lost a baby. You are a very strong, caring, and amazing mom!!

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thank you
by: sharon

Thank you for sharing your story i love the way you spoke about you lesson..very inspirational. Good luck :0)

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